Thursday, March 26, 2015
Update...
Saturday, March 7, 2015
Week 2 (March 1st - 7th)
Jordan had a fairly good night. When I left at 8:30am to go and get a shower he was resting. While I was gone he began...
Posted by Working Towards a Cure - A Life Change for Jordan on Sunday, March 1, 2015
a father's love...from Sunday March 1st, when Jordan was struggling with hallucinations. Photo Credit: Eileen Horning
Posted by Working Towards a Cure - A Life Change for Jordan on Sunday, March 1, 2015
The CT and MRI of Jordan's head showed clear so the transplant team has stopped giving him morphine thinking that may be...
Posted by Working Towards a Cure - A Life Change for Jordan on Sunday, March 1, 2015
Jordan is doing much, much better. The head nurse said it definitely was the morphine. Ernie shaved his whiskers and we...
Posted by Working Towards a Cure - A Life Change for Jordan on Monday, March 2, 2015
Orange - my favorite!
Posted by Working Towards a Cure - A Life Change for Jordan on Monday, March 2, 2015
According to mother's update this morning, "Jordan had to wear his nasal cannula over night because as soon as he went...
Posted by Working Towards a Cure - A Life Change for Jordan on Tuesday, March 3, 2015
Jordan was up and walking today. They took off the nasal cannula and he is doing fine without it. His mind is much...
Posted by Working Towards a Cure - A Life Change for Jordan on Tuesday, March 3, 2015
Out of his room, enjoying the view of the city from the sunroom/waiting area
Posted by Working Towards a Cure - A Life Change for Jordan on Tuesday, March 3, 2015
All the children had the opportunity to talk to Jordan this morning via Skype. It was wonderful to see him sitting up...
Posted by Working Towards a Cure - A Life Change for Jordan on Wednesday, March 4, 2015
The transplant team was just in to see Jordan. He is eating and drinking this morning and is keeping it down. The...
Posted by Working Towards a Cure - A Life Change for Jordan on Wednesday, March 4, 2015
drinking chocolate milk for first time
Posted by Working Towards a Cure - A Life Change for Jordan on Wednesday, March 4, 2015
Pic from Thursday: Jordan enjoying his eggs and bacon!
Posted by Working Towards a Cure - A Life Change for Jordan on Friday, March 6, 2015
Jordan has been released from the Children's Hospital of Pittsburgh to the Family house. We need to do labs tomorrow and...
Posted by Working Towards a Cure - A Life Change for Jordan on Friday, March 6, 2015
The first thing he wanted done when he got out of the hospital ...A HAIRCUT!!! He can't stand long hair.
Posted by Working Towards a Cure - A Life Change for Jordan on Saturday, March 7, 2015
Saturday, February 28, 2015
Week 1 (February 22nd-28th)
Please pray for us....Yesterday at 11:24am we received a call from Pittsburgh telling us they have a potential donor. we...
Posted by Working Towards a Cure - A Life Change for Jordan on Monday, February 23, 2015
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| Prepped for surgery |
Jordan is in the ICU and doing as well as can be expected. Surgery took from 5:30 pm until 2:30 this morning. the doctor was pleased with how well everything went.
Posted by Working Towards a Cure - A Life Change for Jordan on Tuesday, February 24, 2015
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| Out of the OR, in ICU |
Jordan is going back into the OR again to see why there isn't a better blood flow in his liver. Pray that Dr. Soltz can find the reason......
Posted by Working Towards a Cure - A Life Change for Jordan on Tuesday, February 24, 2015
Dr. Soltz just called and said everything looks and they will most likely close the incision in a couple of days.
Posted by Working Towards a Cure - A Life Change for Jordan on Tuesday, February 24, 2015
On behalf of my family both at home and in Pittsburgh, I want to thank you for all your prayers, phone calls, and texts...
Posted by Working Towards a Cure - A Life Change for Jordan on Tuesday, February 24, 2015
Jordan is doing well. His liver function tests keep getting better. The blood flow to the liver keeps improving. We got...
Posted by Working Towards a Cure - A Life Change for Jordan on Wednesday, February 25, 2015
Jordan had a good night. His blood pressure/heart rate go up when we talk to him so we are trying to be quiet in his...
Posted by Working Towards a Cure - A Life Change for Jordan on Thursday, February 26, 2015
Jordan is scheduled at 7:30 to go back to the OR to close his incision. I watched the Attending Fellow and the nurse...
Posted by Working Towards a Cure - A Life Change for Jordan on Friday, February 27, 2015
Jordan is back from the OR and they closed the skin but not the muscle. The Doctor told us that the pulse to the liver...
Posted by Working Towards a Cure - A Life Change for Jordan on Friday, February 27, 2015
Out of the ICU, settled on the transplant floor...
Posted by Working Towards a Cure - A Life Change for Jordan on Saturday, February 28, 2015
Jordan has been transferred out of PICU up on the transplant floor. He is in room 728 and is doing well. He is awake...
Posted by Working Towards a Cure - A Life Change for Jordan on Saturday, February 28, 2015
Prayer Request: Jordan has been struggling with some hallucinations today. They are unsure if it is related to morphine...
Posted by Working Towards a Cure - A Life Change for Jordan on Saturday, February 28, 2015
Saturday, January 17, 2015
My score is 30...
I have been on the official transplant list since November 9th. My score is 30 and the top of the list is 40.
Posted by Working Towards a Cure - A Life Change for Jordan on Saturday, January 17, 2015
Saturday, November 8, 2014
Wednesday, November 5, 2014
Evaluation, Day Two
Here is the update my mother has shared on Jordan's FB page concerning day two in Pittsburgh:
"Another day of test and doctor visits has gone well. We toured the transplant suite with a medical personal that has been involved in transplants for 30 years. What a vast amount of knowledge they had! Tomorrow we will meet with the transplant team of doctors and have the last of his tests done. Then we can head home. The transplant team has their final meeting Friday afternoon and they will call us to tell us where on the list he is placed. Jordan will receive a low number but with in a few weeks he will be placed much higher on the list due to the critical natural of MSUD. Thank you for your prayers."
Andrea on behalf of my family